Being in protective isolation following autologous haematopoietic stem cell transplantation: a phenomenological study

Aims and Objectives: To explore the lived experiences of patients with haematologicalmalignancies who had been in protective isolation during their hospital stay forautologous haematopoietic stem cell transplantation.Background: Although protective isolation aims to benefit patients’ health by preventinginfection, it could also imply harmful psycho-social implications for patients,such as loneliness.Design: A descriptive phenomenological study was conducted in an Italian universityhospital.Methods: Nine patients with haematological malignancies who had been in protectiveisolation for autologous haematopoietic stem cell transplantation were enrolled.They were interviewed during their weekly ambulatory visits, which are usually carriedout up to 100 days post-transplant, and asked about their stay in isolation.Giorgi’s method of analysis was used to describe the experience of protective isolationfrom the patient’ perspective.Results: Eight themes emerged: isolation is a defence, threats from which patientshave to defend themselves, rules for defence, the burden of the defence, externalstrategies for defence, inner strengths for defence, defending loved ones and outcomesof the defence. The general structure was expressed as a defence from suffering.Conclusions: While fighting a hard battle against cancer, informants largely acceptedthe strict isolation measure and represented it as a shield for an effective defence.Relevance to clinical practice: Nurses should provide emotional and social supportto help patients feel like active fighters and strengthen their strategies for an effectivedefence from suffering.